Home » Posts tagged "Hope"

So I had Brain Surgery

I believe in miracles. I went to my endocrinologist, and he had a new Physicians Assistant. She had worked for a brilliant neurosurgeon who happens to practice in Las Vegas and treats a condition called Chiari Malformations. She looked at my history, and thought it would be worth a call to her old boss to see if my set of odd symptoms fit into this chiari pattern, which they do. Two days later, I was in front of the neurosurgeon. Two days after that I had the advanced and very technical MRI that showed significant pressure increases in my brain and a congenital brain defect called hypoplastic posterior fossa that put pressure on many parts of my brain and may have had a key role in my pituitary gland failing. At this point, the surgeon, Dr. Seiff, decided that I was a candidate for this surgery. His first question was...
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New Adventures

I had a blog for Multiple Sclerosis, but now it seems they’ve found yet another diagnosis for my maddening and wildly varied symptoms. I am happy for a more unifying diagnosis, but have been through this process far too many times. I need to find another specialist in another state and then figure out how exactly I’m going to pay all the bills. My one saving grace is the change in medications has vastly changed my day-to-day life and it’s only been one day, so hurray for small blessings. My son has ADHD. Up until now, we’ve just dealt with it. Then I got sick, and we medicated him. Now I hopefully will get better and be able to parent in a way that helps him to find success. My husband has been mom, dad, breadwinner, and everything else in the household I hope to replace some of those roles...
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